Adolescents growing with HIV/AIDS: experiences of the transition from pediatrics to adult care

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dc.contributor.author Machado, Daisy Maria [UNIFESP]
dc.contributor.author Galano, Eliana [UNIFESP]
dc.contributor.author Succi, Regina Celia de Menezes [UNIFESP]
dc.contributor.author Vieira, Carla Maria
dc.contributor.author Turato, Egberto Ribeiro
dc.date.accessioned 2020-07-22T13:22:55Z
dc.date.available 2020-07-22T13:22:55Z
dc.date.issued 2016
dc.identifier http://dx.doi.org/10.1016/j.bjid.2015.12.009
dc.identifier.citation Brazilian Journal Of Infectious Diseases. Rio De Janeiro, v. 20, n. 3, p. 229-234, 2016.
dc.identifier.issn 1413-8670
dc.identifier.uri https://repositorio.unifesp.br/handle/11600/55944
dc.description.abstract The main objective of this work is to describe the formation of the Transition Adolescent Clinic (TAC) and understand the process of transitioning adolescents with HIV/AIDS from pediatric to adult care, from the vantage point of individuals subjected to this process. A qualitative method and an intentional sample selected by criteria were adopted for this investigation, which was conducted in Sao Paulo, Brazil. An in-depth semi-structured interview was conducted with sixteen HIV-infected adolescents who had been part of a transitioning protocol. Adolescents expressed the need for more time to become adapted in the transition process. Having grown up under the care of a team of health care providers made many participants have reluctance toward transitioning. Concerns in moving away from their pediatricians and feelings of disruption, abandonment, or rejection were mentioned. Participants also expressed confidence in the pediatric team. At the same time they showed interest in the new team and expected to have close relationships with them. They also ask to have previous contacts with the adult health care team before the transition. Their talks suggest that they require slightly more time, not the time measured in days or months, but the time measured by constitutive experiences capable of building an expectation of future. This study examines the way in which the adolescents feel, and help to transform the health care transition model used at a public university. Listening to the adolescents' voices is crucial to a better understanding of their needs. They are those who can help the professionals reaching alternatives for a smooth and successful health care transition. (C) 2016 Elsevier Editora Ltda. en
dc.description.sponsorship Fundacao de Amparo a Pesquisa do Estado de Sao Paulo, Brazil (FAPESP)
dc.format.extent 229-234
dc.language.iso eng
dc.publisher Elsevier Brazil
dc.relation.ispartof Brazilian Journal Of Infectious Diseases
dc.rights Acesso aberto
dc.subject HIV en
dc.subject AIDS en
dc.subject Health care transition en
dc.subject Adolescent en
dc.title Adolescents growing with HIV/AIDS: experiences of the transition from pediatrics to adult care en
dc.type Artigo
dc.description.affiliation Univ Fed Sao Paulo Unifesp, Escola Paulista Med, Dept Pediat, Sao Paulo, SP, Brazil
dc.description.affiliation Univ Fed Sao Paulo Unifesp, Escola Paulista Med, Sao Paulo, SP, Brazil
dc.description.affiliation Univ Estadual Campinas UNICAMP, Fac Ciencias Med, Dept Med Psychol & Psychiat, Researcher Lab Clin Qualitat Res, Campinas, SP, Brazil
dc.description.affiliationUnifesp Univ Fed Sao Paulo Unifesp, Escola Paulista Med, Dept Pediat, Sao Paulo, SP, Brazil
dc.description.affiliationUnifesp Univ Fed Sao Paulo Unifesp, Escola Paulista Med, Sao Paulo, SP, Brazil
dc.description.sponsorshipID FAPESP: 10/15463-8
dc.identifier.file S1413-86702016000300002.pdf
dc.identifier.scielo S1413-86702016000300002
dc.identifier.doi 10.1016/j.bjid.2015.12.009
dc.description.source Web of Science
dc.identifier.wos WOS:000376443900002
dc.coverage Rio De Janeiro
dc.citation.volume 20
dc.citation.issue 3



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