The strength of information on retinoblastoma for the family of the child

The strength of information on retinoblastoma for the family of the child

Author Amador, Daniela Doulavince Autor UNIFESP Google Scholar
Marcilio, Ana Carolina Autor UNIFESP Google Scholar
Souza Soares, Juliana dos Santos Autor UNIFESP Google Scholar
Baptista Marques, Fernanda Ribeiro Autor UNIFESP Google Scholar
Duarte, Adriana Maria Autor UNIFESP Google Scholar
Mandetta, Myriam Aparecida Autor UNIFESP Google Scholar
Abstract Objective: To understand the need for information from the family members of children with retinoblastoma. Methods: A qualitative study based on the Patient and Family Centered Care Model. Families of children undergoing treatment at a referral institution in pediatric oncology participated. Qualitative content analysis guided the data collection and analysis. Results: The strength of information on retinoblastoma for the family of these children reveals the value the family assigns to the information about the child's illness during a time of intense suffering

the paths they take to obtain the information

and, the elements considered to be essential to feel fulfilled in their own right. Conclusion: Provision of information that respects the family's time is essential

it must be honest, and contemplate future perspectives for the child, in a dialogical space. Thus, a practice based on the Patient and Family Centered Care Model is promoted.
Keywords Retinoblastoma
Neoplasms
Child
Family
Health communication
Information
xmlui.dri2xhtml.METS-1.0.item-coverage Sao Paulo
Language English
Date 2018
Published in Acta Paulista De Enfermagem. Sao Paulo, v. 31, n. 1, p. 87-94, 2018.
ISSN 0103-2100 (Sherpa/Romeo, impact factor)
Publisher Univ Fed Sao Paulo, Dept Enfermagen
Extent 87-94
Origin http://dx.doi.org/10.1590/1982-0194201800013
Access rights Open access Open Access
Type Article
Web of Science ID WOS:000432486500013
SciELO ID S0103-21002018000100087 (statistics in SciELO)
URI https://repositorio.unifesp.br/handle/11600/54298

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