Fatigue in children with juvenile idiopathic arthritis: reliability of the Pediatric Quality of Life Inventory-Multidimensional Fatigue Scale

Fatigue in children with juvenile idiopathic arthritis: reliability of the Pediatric Quality of Life Inventory-Multidimensional Fatigue Scale

Author Paulo, Luciana Tudech S. P. Autor UNIFESP Google Scholar
Len, Claudio Arnaldo Autor UNIFESP Google Scholar
Hilário, Maria Odete Esteves Autor UNIFESP Google Scholar
Pedroso, Soraya A. Google Scholar
Vitalle, Maria Sylvia S. Autor UNIFESP Google Scholar
Terreri, Maria Teresa Autor UNIFESP Google Scholar
Institution Universidade Federal de São Paulo (UNIFESP)
Univ Sorocaba
Abstract The aim of the study was (1) to translate the Pediatric Quality of Life Inventory-Multidimensional Fatigue Scale (PedsQL-Fatigue) into Brazilian Portuguese language and culture and evaluate its reliability and (2) to measure fatigue among patients with juvenile idiopathic arthritis (JIA): (1) Translation of the PedsQL-Fatigue by two bilingual researchers; (2) Backtranslation into English assessed by the authors of the original version; (3) Pilot study with five patients followed in the Pediatric Rheumatology Outpatient Clinic and their parents; and (4) Field study and assessment of measurement properties (internal consistency, reproducibility, and construct validity). in this stage, the scale was administered to 67 patients with JIA and 63 healthy individuals, aged from 2 to 18 years old, matched by age (from 2 to 4, 5 to 7, 8 to 12, and from 13 to 18 years old). Cronbach's alpha coefficient ranged from 0.6 to 0.8 for children and parents, indicating the instrument's good internal consistency. the scale's construct validity was confirmed by a satisfactory Spearman's coefficient between the PedsQL-Fatigue and the generic PedsQL 4.0 (0.840 for the children and 0.742 for the parents). Reproducibility was also adequate (0.764 for the children and 0.938 for the parents). No differences were found between the scores obtained by the JIA group and control group, though lower scores were observed among patients with clinically active JIA when compared to those without clinical activity. the PedsQL-Fatigue is a valid and reliable tool, and that can be used to measure fatigue among patients with JIA.
Keywords Fatigue
Juvenile idiopathic arthritis
Quality of life
Questionnaires
Translation
Language English
Date 2015-01-01
Published in Rheumatology International. Heidelberg: Springer Heidelberg, v. 35, n. 1, p. 133-139, 2015.
ISSN 0172-8172 (Sherpa/Romeo, impact factor)
Publisher Springer
Extent 133-139
Origin http://dx.doi.org/10.1007/s00296-014-3064-5
Access rights Closed access
Type Article
Web of Science ID WOS:000347251000018
URI http://repositorio.unifesp.br/handle/11600/38570

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