Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) Initiatives

Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) Initiatives

Author Condino-Neto, A. Google Scholar
Franco, J. L. Google Scholar
Espinosa-Rosales, F. J. Google Scholar
Leiva, L. E. Google Scholar
King, A. Google Scholar
Porras, O. Google Scholar
Oleastro, M. Google Scholar
Bezrodnik, L. Google Scholar
Grumach, A. S. Google Scholar
Costa-Carvalho, B. T. Autor UNIFESP Google Scholar
Sorensen, R. U. Google Scholar
Institution Universidade de São Paulo (USP)
Univ Antioquia
Inst Nacl Pediat
Lousiana State Univ Hlth Sci Ctr
Hosp Ninos Luis Calvo Mackenna
Hosp Nacl Ninos Dr Carlos Saenz Herrera
Hosp Nacl Pediat Prof Dr Juan P Garrahan
Hosp Ninos Dr Ricardo Gutierrez
Fac Med ABC
Ctr Dis Control Immunizat
Universidade Federal de São Paulo (UNIFESP)
Univ La Frontera
Abstract Primary immunodeficiency diseases (PIDD) are associated with significant morbidity and mortality and result in a significant public health burden. This is in part due to the lack of appropriate diagnosis and treatment of these patients. It is critical that governments become aware of this problem and provide necessary resources to reduce this impact on health care systems. Leading physicians in their respective countries must be supported by their own governments in order to implement tools and provide education and thus improve the diagnosis and treatment of PIDD. the Latin American Society of Primary Immunodeficiencies (LASID) has initiated a large number of activities aimed at achieving these goals, including the establishment of a PIDD registry, development of educational programmes and guidelines, and the introduction of a PIDD fellowship programme. These initiatives are positively impacting the identification and appropriate treatment of patients with PIDD in Latin America. Nevertheless, much remains to be done to ensure that every person with PIDD receives proper therapy. (C) 2011 SEICAP. Published by Elsevier Espana, S.L. All rights reserved.
Keywords Latin America
Primary immunodeficiency
Recurrent infections
Immunoglobulins
Genetic disorders
Language English
Date 2012-05-01
Published in Allergologia Et Immunopathologia. Barcelona: Elsevier Doyma Sl, v. 40, n. 3, p. 187-193, 2012.
ISSN 0301-0546 (Sherpa/Romeo, impact factor)
Publisher Elsevier B.V.
Extent 187-193
Origin http://dx.doi.org/10.1016/j.aller.2012.01.003
Access rights Closed access
Type Article
Web of Science ID WOS:000304340600009
URI http://repositorio.unifesp.br/handle/11600/34850

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