Critical, issues and needs in management of primary immunodeficiency diseases in Latin America

Critical, issues and needs in management of primary immunodeficiency diseases in Latin America

Author Condino-Neto, A. Google Scholar
Franco, J. L. Google Scholar
Trujillo-Vargas, C. Google Scholar
Espinosa-Rosales, F. J. Google Scholar
Leiva, L. E. Google Scholar
Rodriguez-Quiroz, F. Google Scholar
King, A. Google Scholar
Lagos, M. Google Scholar
Oleastro, M. Google Scholar
Bezrodnik, L. Google Scholar
Grumach, A. S. Google Scholar
Costa-Carvalho, B. T. Autor UNIFESP Google Scholar
Sorensen, R. U. Google Scholar
Institution Universidade de São Paulo (USP)
Univ Antioquia
Inst Nacl Pediat
LSU Hlth Sci Ctr
Hosp Especialidades Ctr Med La Raza
Hosp Ninos Luis Calvo Mackenna
Univ Valparaiso
Hosp Nacl Pediat Prof Dr Juan P Garrahan
Hosp Ninos Dr Ricardo Gutierrez
Universidade Federal de São Paulo (UNIFESP)
Abstract Experts from six Latin American countries met to discuss critical issues and needs in the diagnosis and management of primary immunodeficiency diseases (PIDD). the diagnosis of PIDD is generally made following referral to an immunology centre located in a major city, but many paediatricians and general practitioners are not sufficiently trained to suspect PIDD in the first place. Access to laboratory testing is generally limited, and only some screening tests are typically covered by government health programmes. Specialised diagnostic tests are generally not reimbursed. Access to treatment varies by country reflecting differences in healthcare systems and reimbursement policies. An online PIDD Registry Programme for Latin America has been available since 2009, which will provide information about PIDD epidemiology in the region. Additional collaboration across countries appears feasible in at least two areas: a laboratory network to facilitate the diagnosis of PIDD, and educational programmes to improve PIDD awareness. in total, these collaborations should make it possible to advance the diagnosis and management of PIDD in Latin America. (C) 2010 SEICAP. Published by Elsevier Espana, S.L. All rights reserved.
Keywords Diagnosis
Education
Latin America
Primary immunodeficiency diseases
Registry
Treatment
Language English
Sponsor Baxter
Baxter Biosciences
Date 2011-01-01
Published in Allergologia Et Immunopathologia. Barcelona: Elsevier Doyma Sl, v. 39, n. 1, p. 45-51, 2011.
ISSN 0301-0546 (Sherpa/Romeo, impact factor)
Publisher Elsevier B.V.
Extent 45-51
Origin http://dx.doi.org/10.1016/j.aller.2010.09.001
Access rights Closed access
Type Article
Web of Science ID WOS:000287296100009
URI http://repositorio.unifesp.br/handle/11600/33272

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